Patients' perspective, quality of life and treatment goals in Hailey–Hailey disease: Lessons learned from the German National Registry

Keyphrases

• Quality of Life 100%
• National Registry 100%
• Lessons Learned 100%
• Treatment Quality 100%
• Treatment Goals 100%
• Patient Perspective 100%
• Life Goals 100%
• Life Satisfaction 50%
• Systemic Treatment 50%
• Dermatology Life Quality Index 50%
• Subjective Symptoms 50%
• Burning Sensation 50%
• Numeric Rating Scale 50%
• Clinical Trials 25%
• Germany 25%
• Subjective Well-being 25%
• Treatment Efficacy 25%
• Severely Affected 25%
• Disease Diagnosis 25%
• Epidemiological Study 25%
• Quality of Life Impact 25%
• Real-life Data 25%
• Patient Needs 25%
• Patient-assessed 25%
• Medical Conditions 25%
• Overall Satisfaction 25%
• Financial Burden 25%
• Disease Control 25%
• Medical Care 25%
• Antibiotics 25%
• Disease Activity 25%
• Data State 25%
• Self-help 25%
• Dermatology Clinic 25%
• Major Diseases 25%
• Patient Satisfaction 25%
• Corticosteroids 25%
• Difficult-to-treat 25%
• Retinoids 25%
• Patient Perception 25%
• Financial Aspects 25%
• Satisfaction with Care 25%
• Darier Disease 25%
• Office-based 25%
• Pain Sensation 25%
• Disease Impact 25%
• Workability 25%
• Itch Sensation 25%
• Darier 25%
• Well Treatment 25%
• Limited Disease 25%
• Disease Burden 25%
• Debilitating Disease 25%
• Illness Perception 25%
• Dermatologist 25%
• Healthcare Support 25%
• Scale Questionnaire 25%
• Low-dose Naltrexone 25%
• Dermatoses 25%
• Satisfaction with Life Scale 25%

Medicine and Dentistry

• Quality of Life 100%
• Diseases 100%
• Medical Care 33%
• Systemic Therapy 33%
• Numeric Rating Scale 33%
• Burning Sensation 33%
• Nociception 16%
• Clinical Trial 16%
• Low Drug Dose 16%
• Dermatosis 16%
• Dermatology 16%
• Disease Activity 16%
• Disease Burden 16%
• Pruritus 16%
• Patient Satisfaction 16%
• Retinoid 16%
• Satisfaction with Life Scale 16%
• Darier's Disease 16%
• Work Capacity 16%
• Naltrexone 16%
• Antibiotics 16%
• Corticosteroid 16%