TY - JOUR
T1 - Long-term risks after kidney donation
T2 - How do we inform potential donors? A survey from DESCARTES and EKITA transplantation working groups
AU - Mjøen, Geir
AU - Maggiore, Umberto
AU - Kessaris, Nicos
AU - Kimenai, DIederik
AU - Watschinger, Bruno
AU - Mariat, Cristophe
AU - Sever, Mehmet Sukru
AU - Crespo, Marta
AU - Peruzzi, Licia
AU - Spasovski, Goce
AU - Sørensen, Søren Schwartz
AU - Heemann, Uwe
AU - Pascual, Julio
AU - Viklicky, Ondrej
AU - Courtney, Aisling E.
AU - Hadaya, Karine
AU - Wagner, Laszlo
AU - Nistor, Ionut
AU - Hadjianastassiou, Vassilis
AU - Durlik, Magdalena
AU - Helanterä, Ilkka
AU - Oberbauer, Rainer
AU - Oniscu, Gabriel
AU - Hilbrands, Luuk
AU - Abramowicz, Daniel
N1 - Publisher Copyright:
© 2021 The Author(s) 2021. Published by Oxford University Press on behalf of ERA-EDTA.
PY - 2021/9/1
Y1 - 2021/9/1
N2 - Background: Publications from the last decade have increased knowledge regarding long-term risks after kidney donation. We wanted to perform a survey to assess how transplant professionals in Europe inform potential kidney donors regarding long-term risks. The objectives of the survey were to determine how they inform donors and to what extent, and to evaluate the degree of variation. Methods: All transplant professionals involved in the evaluation process were considered eligible, regardless of the type of profession. The survey was dispatched as a link to a web-based survey. The subjects included questions on demographics, the information policy of the respondent and the use of risk calculators, including the difference of relative and absolute risks and how the respondents themselves understood these risks. Results: The main finding was a large variation in how often different long-term risks were discussed with the potential donors, i.e. from always to never. Eighty percent of respondents stated that they always discuss the risk of end-stage renal disease, while 56% of respondents stated that they always discuss the risk of preeclampsia. Twenty percent of respondents answered correctly regarding the relationship between absolute and relative risks for rare outcomes. Conclusions: The use of written information and checklists should be encouraged. This may improve standardization regarding the information provided to potential living kidney donors in Europe. There is a need for information and education among European transplant professionals regarding long-term risks after kidney donation and how to interpret and present these risks.
AB - Background: Publications from the last decade have increased knowledge regarding long-term risks after kidney donation. We wanted to perform a survey to assess how transplant professionals in Europe inform potential kidney donors regarding long-term risks. The objectives of the survey were to determine how they inform donors and to what extent, and to evaluate the degree of variation. Methods: All transplant professionals involved in the evaluation process were considered eligible, regardless of the type of profession. The survey was dispatched as a link to a web-based survey. The subjects included questions on demographics, the information policy of the respondent and the use of risk calculators, including the difference of relative and absolute risks and how the respondents themselves understood these risks. Results: The main finding was a large variation in how often different long-term risks were discussed with the potential donors, i.e. from always to never. Eighty percent of respondents stated that they always discuss the risk of end-stage renal disease, while 56% of respondents stated that they always discuss the risk of preeclampsia. Twenty percent of respondents answered correctly regarding the relationship between absolute and relative risks for rare outcomes. Conclusions: The use of written information and checklists should be encouraged. This may improve standardization regarding the information provided to potential living kidney donors in Europe. There is a need for information and education among European transplant professionals regarding long-term risks after kidney donation and how to interpret and present these risks.
KW - kidney donors
KW - long-term risks
KW - transplant professionals
UR - http://www.scopus.com/inward/record.url?scp=85116957131&partnerID=8YFLogxK
U2 - 10.1093/ndt/gfab035
DO - 10.1093/ndt/gfab035
M3 - Article
C2 - 33585931
AN - SCOPUS:85116957131
SN - 0931-0509
VL - 36
SP - 1742
EP - 1753
JO - Nephrology Dialysis Transplantation
JF - Nephrology Dialysis Transplantation
IS - 9
ER -