TY - JOUR
T1 - Are adults with congenital heart disease informed about their risk for infective endocarditis and treated in accordance to current guidelines?
AU - Bauer, Ulrike M.M.
AU - Helm, Paul C.
AU - Diller, Gerhard Paul
AU - Asfour, Boulos
AU - Schlensak, Christian
AU - Schmitt, Katharina
AU - Ewert, Peter
AU - Tutarel, Oktay
N1 - Publisher Copyright:
© 2017 Elsevier B.V.
PY - 2017/10/15
Y1 - 2017/10/15
N2 - Background Adults with congenital heart disease (ACHD) have an increased risk for infective endocarditis (IE). In the last decade, the recommendations for IE prophylaxis have changed substantially. The knowledge level of patients about IE and IE prophylaxis has not been studied. Methods Patients recruited via the German National Register for Congenital Heart Defects were invited to an online survey about IE. Patients were divided into two groups based on ESC guidelines: high IE risk (antibiotic prophylaxis recommended) and low IE risk (prophylaxis not recommended). Results Overall, 1458 patients participated and out of these 1211 (age 30.5 ± 11.8 years, female = 54.2%) with detailed clinical information were further analyzed. 343 patients had a high IE risk, whereas 868 had a low risk. Overall, 74.5% (n = 902) stated to know what IE is (low IE risk: 71.3%, high IE risk: 82.5%) Out of these who stated to know what IE is (n = 902), 76.5% (n = 690) chose the correct answer in a multiple choice question (low IE risk: 76.4%; high IE risk: 76.7%). Antibiotic prophylaxis was known to 66.2% (low IE risk: 59.9%; high IE risk: 82.2%). Out of these who stated to know what antibiotic prophylaxis is (n = 802), 83.8% (n = 672) chose the correct answer in a multiple choice question (low IE risk: 82.9%; high IE risk: 85.5%). Conclusions This study reveals important knowledge gaps regarding IE and antibiotic prophylaxis in ACHD patients. A discussion about IE and antibiotic prophylaxis should take place with every ACHD patient during regular clinical contacts to close this knowledge gap.
AB - Background Adults with congenital heart disease (ACHD) have an increased risk for infective endocarditis (IE). In the last decade, the recommendations for IE prophylaxis have changed substantially. The knowledge level of patients about IE and IE prophylaxis has not been studied. Methods Patients recruited via the German National Register for Congenital Heart Defects were invited to an online survey about IE. Patients were divided into two groups based on ESC guidelines: high IE risk (antibiotic prophylaxis recommended) and low IE risk (prophylaxis not recommended). Results Overall, 1458 patients participated and out of these 1211 (age 30.5 ± 11.8 years, female = 54.2%) with detailed clinical information were further analyzed. 343 patients had a high IE risk, whereas 868 had a low risk. Overall, 74.5% (n = 902) stated to know what IE is (low IE risk: 71.3%, high IE risk: 82.5%) Out of these who stated to know what IE is (n = 902), 76.5% (n = 690) chose the correct answer in a multiple choice question (low IE risk: 76.4%; high IE risk: 76.7%). Antibiotic prophylaxis was known to 66.2% (low IE risk: 59.9%; high IE risk: 82.2%). Out of these who stated to know what antibiotic prophylaxis is (n = 802), 83.8% (n = 672) chose the correct answer in a multiple choice question (low IE risk: 82.9%; high IE risk: 85.5%). Conclusions This study reveals important knowledge gaps regarding IE and antibiotic prophylaxis in ACHD patients. A discussion about IE and antibiotic prophylaxis should take place with every ACHD patient during regular clinical contacts to close this knowledge gap.
KW - Adult congenital heart disease
KW - Antibiotic prophylaxis
KW - Infective endocarditis
UR - http://www.scopus.com/inward/record.url?scp=85025071489&partnerID=8YFLogxK
U2 - 10.1016/j.ijcard.2017.07.040
DO - 10.1016/j.ijcard.2017.07.040
M3 - Article
C2 - 28743483
AN - SCOPUS:85025071489
SN - 0167-5273
VL - 245
SP - 105
EP - 108
JO - International Journal of Cardiology
JF - International Journal of Cardiology
ER -